Sunday, September 18, 2011

For Just A Few Moments

And life with a loved one with cancer goes on. GaGa has started a new medication and she has responded to it, so her paranoid thoughts have seemed to dissapate. We are back to "normal" and she can dial a phone again and call when she is in distress.

GaGa calls, looking to me for the answers and this... is...

uncomfortable.

She has been in denial of the cancer from the very beginning. I've never even heard her say the word so I stopped saying it. She has been told she has cancer many times over by her oncologist and by George and we have now hit the year mark of her diagnosis. Her mantra is always to want to go back to the doctor to find out why she has this pain on her side. She has been saying this every week, several times a week for close to two years. I finally realized the denial no matter how frustrating to me, who is currently diving really deep into my own muck and faulty thinking, has kept her alive. I just happen to be hypersensitive to inauthenticity right now. My meter is high. My learning curve is that not only do I have to accept myself for who I am, I have to accept others...
where
they
are.
Heh, heh, heh.

On a regular basis, GaGa looks to me for answers and in the past, we have gone round and round with what she is saying for me to try to get to the bottom of it. It never makes any sense. Even when I try to repeat back to her what she has JUST said to me, that gets denied. Last week, after a conversation that went round and round, I told her I was confused. I asked are you confused? And she said yes. If you boil it all the way down, through all of her muck, which is very deep, it is that she is scared, confused and in some amount of pain. She doesn't understand what is happening to her or why. I don't have any answers for that. I can't help her not feel pain, anxiety or sadness and I was trying to do that for a long while. There are no answers for why she has cancer and her life has taken a miserable turn.

She asked again to see the doctor, I told her the doctor can't do anything, that she can only take pain medication to keep her as comfortable as possible. And then this is what broke my heart. She finally said okay. I am the parent. She is the child. This is a sucky place to be.

I went to visit her on Friday and she was very calm, coherent and non demanding. This has not been the case for months. I told a story about the girls, and she laughed and that hasn't happened for a while. She had visited with the Hospice Nurse who had told her the same things I did and she used the C-word. GaGa relates that Susie says the pain is the Padget's disease and the cancer. That is the first time I have ever heard the word cancer come out of GaGa's mouth. For this moment in time, she is accepting of cancer and she seems at peace. I don't know how long this will stick but I will remember this moment. Acceptance, even when life brings you misery, pain, and uncertainty, acceptance of these circumstances, brings a sense of peace,

even if for just a few moments.

Saturday, September 17, 2011

Ha Ha Ha




I'm a Leo...my horoscope says that my emotional state will vacillate. Ya think? Ha ha ha ha ha.

Wednesday, September 14, 2011

Finding a Way Back to Love

While folding the never ending pile of clean clothes, I found the movie "Music and Lyrics" on TBS. This is a older movie from 2007 that makes fun of an 80's pop band member who is stuck milking his decades old fame for his current livelihood. I love Hugh Grant and his perfectly timed sarcasm. One of my favorite part is when he injures his hip gyrating. That move is about 25 seconds into the video. It will redirect you to the You Tube website to watch if you are so inclined.



I found myself looking for meaning even in this rom-com movie. A new low even for me. And then I laughed at myself for doing so. A new high for me. It's just cute and funny. Though finding a way back to love is a really good theme....
This is the original trailer.

Monday, September 12, 2011

So Should We Have Another Baby?

Today is my youngest's 6th Birthday. Last night we started watching our home VHS(!) videos (yes, I have work to do) of her birth. It was with great fondness and sentamentality I viewed them as babies. I joked with George that we should have another and I wasn't serious but the idea was a pleasant one as opposed to the terror the idea would have felt to me previously. He told me I was on my own, either because he has had a vasectomy or that he will be 50 in 2 short years. I said, we could adopt...

And then...Mallory decided to remind what it was like to have a newborn. She came into our bedroom on four different occasions from 12:30am to 3:00a.m. and then I finally asked if she wanted me to lay down with her and I did in her twin bed and she twisted and turned. But I was so verklempt that I had a precious girl who was so excited about her birthday, it didn't matter how much sleep I was losing. Until the next day when my brain wouldn't function because I was so tired. But it was a happy tired.

I love the above picture of Baby Mallory and round cheeked Riley. I love watching what the girls looked and sounded like a few short years ago and how they look and sound the same now but just more grown up versions. Certain mannerisms are the same. I also see what I missed back then. There is video footage that I have absolutely no recollection of taping which makes it kind of fun to watch.

I wonder what they will do as they grow up? What high school will look like for them? Where will their interests take them? I think about how I am learning to love them for who they are, not who I want them to be while at the same time I'm learning to love me for who I am. It's a two for one right now and I am ecstatic to be have this journey. It's quite a ROAR!

Thursday, September 8, 2011

New Growth

Yes, that is a nasty picture of my toes. There is a point. I am feeling sick right now, raw throat, stuffy nose, sneezing, watery eyes - a poster child for a cold commercial. I feel bad. I have a strong desire to eat my way through this feeling bad. I had some chicken soup and crackers and drank some tea but I wanted more, like chocolate.

I'm tired of eating to nurture myself when life feels overwhelming. Although I have learned much and have evolved, the desire to eat still beckons mightily. A hot bath is in order, because my body is achey and it will remove me further away from the kitchen.
I noticed my toes in the tub. I had decided a few weeks back to give the nails a break from the polish, and hadn't gotten around to doing anything with them. (And they really need to be cleaned up as you can see. And one of life's big questions, are you supposed to get rid of the hair on the big toe?) Anyway, I noticed that the new clean nail growth is pushing the old yellowed nail to the top.

Hmmmm.

I have learned many new ways to take care and nurture myself that I never knew how to do before. I'm have begun thinking in new ways. But the yellowed old ways are still there, lingering and waiting to come out especially when I'm feeling sick, and down.

Okay, let's get to the bottom of this, what feelings am I trying to push down? Immediately my mother in law comes to mind. The last couple of weeks have been REALLY difficult. How many times have I already said that in the last year since she was diagnosed? Just when I think we've got the handle on the last level of difficulty, a new one is just around the corner waiting. She's been really confused lately and quite paranoid. Every couple of days we hear what is fresh on her mind: George and I are getting a divorce, he's cheating on me, we've moved out of town (together at least!) and left her, we're hiding something from her, George is dead, we now have three kids, (a boy this time!), and George has us living in a drabby apartment. All of these involve George, but now she has begun to fixate on me and my perceived shortcomings. She believes these thoughts and is scared and frightened. She can't work her telephone, or change the channel on her tv, but she can still move her way around in her wheelchair and make sure we know the television is broken and we are not answering her calls. She looks miserable and she shares that misery with us. It is draining. At the end of 2010, it looked like cancer was going to take her life in a speedy manner but she plateaued. I didn't realize that you can linger in this horrible state in between living and dying. Or I had not come into contact with it so personally.

My tears start falling when I understand that this is what I'm holding onto and not acknowledging and not allowing through. More grief. The desire for chocolate has faded somewhat and the desire to write about the situation springs up. I have put a call into the Hospice Social Worker because I need to talk to a professional who deals with grief on a regular basis. Last time I talked to her, she gave me profound insight especially as she has met my mother in law. I so needed to hear what she told me. This is going to help me more than the chocolate. A little new growth is pushing me.

Wednesday, September 7, 2011

Coming off a long weekend for Labor Day, Tropical Storm Lee made his way slowly onshore and thankfully it was just windy, rainy overcast days of no real magnitude for us. I was hiding out in our spare room trying to have some ME time, when I found "Eat Pray Love" on cable. Lately quotes from Elizabeth Gilbert have been floating through my awareness, thanks to my FB friends.

I walked in on this part where Richard from Texas tells Groceries this...


“You need to learn how to select your thoughts just the same way you select your clothes every day. This is a power you can cultivate. If you want to control things in your life so bad, work on the mind. That’s the only thing you should be trying to control.”

Shazam. I heard it like I'd never heard it before. I LOVE when this happens.

I think back to all of the quotes I have known about attitude the last 25 years. It's not what happens to you in life, it's how you react to it, etc. They sound cliche to me because I do know when you boil things down, truths ARE really simple. But it is not easy to go through the boiling to get it back to that simple truth. But I'm willing to keep cultivating.

Sunday, September 4, 2011

Steel Magnolia

I want to be a steel magnolia. That has just always sounded good to me. This is the definition from Urban Dictionary: A southern woman who is strong and independent yet very feminine. I want to be someone who can take it. I want to be considered strong. I think that is Western society's influence on me. And then there's the movie with Julia Roberts which was filmed in Natchitoches, LA. And I HAVE taken the tour!

And then I think... let me take a look at this again. I need to be myself. That is what I have discovered this whole journey has been about. I need to be who I authentically was born, how God made me. The "supposed tos" and "shoulds" are falling by the wayside bit by slow bit. I am changing the way my thoughts have always been.

I need to take care of myself so that I can take care of the rest of my family, especially now with GaGa's illness hanging over us. That has been the message the last 3 weeks. Maybe I need to take a break for a few hours and get away. What is this strong, tough business? Strong and tough don't make one empathetic and loving. That's who I really strive to be, that is who I really want to be. Holy cow, that is who I am.

I need to be who I am and then everything will feel right in my soul, no matter what is going on around me. I am tough, and I am tender. I am emotional. I am strong. And some days I have nice hair if I take the time.

Followers